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	<title>Comments on: Tell us why you support and sign up for e-alerts</title>
	<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/</link>
	<description>Stand Up For Tiny Lives Website</description>
	<pubDate>Sun, 01 Aug 2010 05:38:10 +0000</pubDate>
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		<title>By: Tracey</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-200</link>
		<author>Tracey</author>
		<pubDate>Wed, 20 May 2009 21:13:28 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-200</guid>
		<description>My daughter was 22 weeks pregnant when she started getting pains...it hadnt been an easy time for any of us...she had just turned 16 when we found out she was pregnant, in her final GCSE year,but decided she had got pregnant and she wouldnt do anything but keep the baby. We had a few bad times throughout the next few months. several times she had bleeding and we were always back and forward to the hospital...each time she was scanned and baby was fine.  As she got bigger baby seemed to always bunch up on one side...which I thought bit strange...but Drs I spoke to didnt seem concerned. Anyway to get back to the point she started getting pains and we arrived at the hospital on early hours of Feb 14th, Midwife told us it was prob warter infection but maybe she was in labour.  Listened to heartbeat which was very strong. My daughters pains started coming really quickly and from how she described them I thought she was in labour.  It took 3 hours before she was seen by a Dr who then called the registrar. She was finally examined almost 3.5 hours later and we were told she was going to give birth...could be quick or could be few days, no advice was given and we were told nothing would be done to try and stop/prolong the labour and it would die. It was a very traumatic time. It was only then that my daughter was moved to a delivery room and the bed raised. Was also then told if she hadn't delivered by morning consultant may scan her and posibly give stitch. Anyway Eloise was born at 08.28am, her heart was still beating but she wasnt even given to anyone to hold. Sometimes I think it was maybe because my daughter was only 16 that she was treated differently (the week before we had sorted out her 6th form timetable and she realised she still needed to forfil her ambitions as well as look after a baby)but now realise its not the case. We had to wait 2 months before the pathology report was done and we could have the funeral. There was no research or anything apart froma scan that my Dr had organised which my daughter had last week...it has found she has a Bicornulate Uterus which explains alot...but I really think so much more should be done. It was so clinical when my daughter had Eloise and the seemed to be a lack of sensitivity, I thought it was because of age but reading peoples stories I now realise this is not the case.
I sent a mail to my MP Alan Duncan and this was his reply...well not directly from him

Dear Mrs Bellis

Thank you for contacting me about premature babies.

I fully appreciate your concerns over this issue. Last December, the
National Audit Office said that care for premature babies was being
compromised by a shortage of nurses and overcrowded special units. It
said there were "significant shortages" of trained nurses - an average
of three whole-time nurses for each unit - and baby units are often
operating above capacity.

The Report also found that Units had to close their doors to new
admissions an average of once a week during 2006-07, mainly because of a
lack of nurses or cots. Only at the lowest level of care needed (special
care) was the British Association of Perinatal Medicine (BAPM) guideline
ratio of one nurse to every four babies being met. Only half of units
had the right staff-to-baby ratio for high-dependency care (one nurse to
two babies) and less than a quarter had the correct ratios for intensive
care (one nurse to one baby). Furthermore, a third of units were
operating above the 70 per cent capacity recommended as a guideline by
the BAPM, and three units were operating above 100 per cent capacity,
meaning that there were more babies in cots than trained staff to care
for them. 

With 70,000 premature births each year, this is clearly a very worrying
picture and Conservatives are looking at ways we can change this should
we form the next Government. David Cameron has asked the Shadow Health
Secretary, Andrew Lansley, to look at ways to improve post-natal care in
Britain, such as extending midwifery support, with a special focus on
mothers following premature delivery or babies requiring considerable
medical support. It is clear that the Government's rhetoric on neonatal
and maternity services is not being matched by reality and I can assure
you that the Shadow Health Team will continue to press the Government
over this important issue.

Thank you once again for taking the time to write to me.

Yours sincerely

Alan Duncan MP</description>
		<content:encoded><![CDATA[<p>My daughter was 22 weeks pregnant when she started getting pains&#8230;it hadnt been an easy time for any of us&#8230;she had just turned 16 when we found out she was pregnant, in her final GCSE year,but decided she had got pregnant and she wouldnt do anything but keep the baby. We had a few bad times throughout the next few months. several times she had bleeding and we were always back and forward to the hospital&#8230;each time she was scanned and baby was fine.  As she got bigger baby seemed to always bunch up on one side&#8230;which I thought bit strange&#8230;but Drs I spoke to didnt seem concerned. Anyway to get back to the point she started getting pains and we arrived at the hospital on early hours of Feb 14th, Midwife told us it was prob warter infection but maybe she was in labour.  Listened to heartbeat which was very strong. My daughters pains started coming really quickly and from how she described them I thought she was in labour.  It took 3 hours before she was seen by a Dr who then called the registrar. She was finally examined almost 3.5 hours later and we were told she was going to give birth&#8230;could be quick or could be few days, no advice was given and we were told nothing would be done to try and stop/prolong the labour and it would die. It was a very traumatic time. It was only then that my daughter was moved to a delivery room and the bed raised. Was also then told if she hadn&#8217;t delivered by morning consultant may scan her and posibly give stitch. Anyway Eloise was born at 08.28am, her heart was still beating but she wasnt even given to anyone to hold. Sometimes I think it was maybe because my daughter was only 16 that she was treated differently (the week before we had sorted out her 6th form timetable and she realised she still needed to forfil her ambitions as well as look after a baby)but now realise its not the case. We had to wait 2 months before the pathology report was done and we could have the funeral. There was no research or anything apart froma scan that my Dr had organised which my daughter had last week&#8230;it has found she has a Bicornulate Uterus which explains alot&#8230;but I really think so much more should be done. It was so clinical when my daughter had Eloise and the seemed to be a lack of sensitivity, I thought it was because of age but reading peoples stories I now realise this is not the case.<br />
I sent a mail to my MP Alan Duncan and this was his reply&#8230;well not directly from him</p>
<p>Dear Mrs Bellis</p>
<p>Thank you for contacting me about premature babies.</p>
<p>I fully appreciate your concerns over this issue. Last December, the<br />
National Audit Office said that care for premature babies was being<br />
compromised by a shortage of nurses and overcrowded special units. It<br />
said there were &#8220;significant shortages&#8221; of trained nurses - an average<br />
of three whole-time nurses for each unit - and baby units are often<br />
operating above capacity.</p>
<p>The Report also found that Units had to close their doors to new<br />
admissions an average of once a week during 2006-07, mainly because of a<br />
lack of nurses or cots. Only at the lowest level of care needed (special<br />
care) was the British Association of Perinatal Medicine (BAPM) guideline<br />
ratio of one nurse to every four babies being met. Only half of units<br />
had the right staff-to-baby ratio for high-dependency care (one nurse to<br />
two babies) and less than a quarter had the correct ratios for intensive<br />
care (one nurse to one baby). Furthermore, a third of units were<br />
operating above the 70 per cent capacity recommended as a guideline by<br />
the BAPM, and three units were operating above 100 per cent capacity,<br />
meaning that there were more babies in cots than trained staff to care<br />
for them. </p>
<p>With 70,000 premature births each year, this is clearly a very worrying<br />
picture and Conservatives are looking at ways we can change this should<br />
we form the next Government. David Cameron has asked the Shadow Health<br />
Secretary, Andrew Lansley, to look at ways to improve post-natal care in<br />
Britain, such as extending midwifery support, with a special focus on<br />
mothers following premature delivery or babies requiring considerable<br />
medical support. It is clear that the Government&#8217;s rhetoric on neonatal<br />
and maternity services is not being matched by reality and I can assure<br />
you that the Shadow Health Team will continue to press the Government<br />
over this important issue.</p>
<p>Thank you once again for taking the time to write to me.</p>
<p>Yours sincerely</p>
<p>Alan Duncan MP</p>
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		<title>By: Sara</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-78</link>
		<author>Sara</author>
		<pubDate>Fri, 01 May 2009 07:51:13 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-78</guid>
		<description>As a mother of boy born at 25weeks + 4 days weighing 2lb 1oz, I support this campaign whole heartledly.  Like many other Mums I will never know what prompted our little boy to come early, and more scarily whether any future pregnancies will result in a premature birth.  I look back now we are all home and wonder how my husband and I got through the 110 days our little boy spent in the SCBU in Reading.  We were lucky to be surrounded by a team of brilliant Doctors and Nurses and to have a little boy who is truly a fighter.  Every day I count my blessings that we have a healthy and extremely happy little boy (now weighing 14lbs), but I also know how close we came to losing him.  As well as research in to why premature births happen, I also think more support should be given to the parents of premature babies with regards to the provision of maternity leave. For me my maternity leave started on the day my son was born, effectively meaning a third of my leave was used up whilst my son was in hospital.  Surely dispensations could be given so that parents of premature babies do not have to lose out on quality home time once their child is home.</description>
		<content:encoded><![CDATA[<p>As a mother of boy born at 25weeks + 4 days weighing 2lb 1oz, I support this campaign whole heartledly.  Like many other Mums I will never know what prompted our little boy to come early, and more scarily whether any future pregnancies will result in a premature birth.  I look back now we are all home and wonder how my husband and I got through the 110 days our little boy spent in the SCBU in Reading.  We were lucky to be surrounded by a team of brilliant Doctors and Nurses and to have a little boy who is truly a fighter.  Every day I count my blessings that we have a healthy and extremely happy little boy (now weighing 14lbs), but I also know how close we came to losing him.  As well as research in to why premature births happen, I also think more support should be given to the parents of premature babies with regards to the provision of maternity leave. For me my maternity leave started on the day my son was born, effectively meaning a third of my leave was used up whilst my son was in hospital.  Surely dispensations could be given so that parents of premature babies do not have to lose out on quality home time once their child is home.</p>
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		<title>By: Tammy</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-50</link>
		<author>Tammy</author>
		<pubDate>Fri, 24 Apr 2009 00:00:15 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-50</guid>
		<description>I support Stand Up for Tiny Lives because I had my son Landen at 23 weeks and 6 days. I had no pain! Just felt off that day. When I started bleeding and rushed to the hospital I was 4 centimeters gone. The only thing that saved my sons life was that he was laying across the cervix and not head up or down. I spent 6 days on my head (for real) trying to stop labor. When I got an infection on the sixth day the doctor said they had to take him to save him. He weighed 1lb and 6oz. The doctors told us to be prepared for the worst. The doctor said I have a weak cervix and would never be able to carry a baby to term. He cried at birth, but I was out and didn't get to hear him. Since it was an emergency C-section my husband was not allowed to be in there either. He was rushed 30 minutes from our home to the NICU at The North Mississippi Woman's Hospital in Tupelo, Ms. He spent 4 months in there and finally came home to us a healthy 8lbs. We are forever grateful to the staff for their loving care they gave to our son. We have the biggest group of prayer warriors on Earth! Today - Landen will be 2 in a few weeks. He weighs 26lbs and is thriving and trying to catch up to his peers. He has a few developmental delays as a result of a brain bleed he had at 2 weeks old. My Mighty Man is a trooper. I thank God everyday for the honor to be his mommy. No parent should have to fear the birth of their child. We tried for 8 years to be parents. It should have been the happiest time of our lives. If anyone is through what we have and needs prayer. Email me at tammyhugg@yahoo.com. My Gods blessings always be with you.</description>
		<content:encoded><![CDATA[<p>I support Stand Up for Tiny Lives because I had my son Landen at 23 weeks and 6 days. I had no pain! Just felt off that day. When I started bleeding and rushed to the hospital I was 4 centimeters gone. The only thing that saved my sons life was that he was laying across the cervix and not head up or down. I spent 6 days on my head (for real) trying to stop labor. When I got an infection on the sixth day the doctor said they had to take him to save him. He weighed 1lb and 6oz. The doctors told us to be prepared for the worst. The doctor said I have a weak cervix and would never be able to carry a baby to term. He cried at birth, but I was out and didn&#8217;t get to hear him. Since it was an emergency C-section my husband was not allowed to be in there either. He was rushed 30 minutes from our home to the NICU at The North Mississippi Woman&#8217;s Hospital in Tupelo, Ms. He spent 4 months in there and finally came home to us a healthy 8lbs. We are forever grateful to the staff for their loving care they gave to our son. We have the biggest group of prayer warriors on Earth! Today - Landen will be 2 in a few weeks. He weighs 26lbs and is thriving and trying to catch up to his peers. He has a few developmental delays as a result of a brain bleed he had at 2 weeks old. My Mighty Man is a trooper. I thank God everyday for the honor to be his mommy. No parent should have to fear the birth of their child. We tried for 8 years to be parents. It should have been the happiest time of our lives. If anyone is through what we have and needs prayer. Email me at <a href="mailto:tammyhugg@yahoo.com.">tammyhugg@yahoo.com.</a> My Gods blessings always be with you.</p>
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		<title>By: Emma Neilson</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-49</link>
		<author>Emma Neilson</author>
		<pubDate>Thu, 23 Apr 2009 22:50:11 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-49</guid>
		<description>I support this charity as i had a baby girl at 28 weeks and unfortunately she was born sleeping but babies can survive at this age and the support the nurses give them is unbelievable.
Im sure if my baby had been alive she would have been looked after well.</description>
		<content:encoded><![CDATA[<p>I support this charity as i had a baby girl at 28 weeks and unfortunately she was born sleeping but babies can survive at this age and the support the nurses give them is unbelievable.<br />
Im sure if my baby had been alive she would have been looked after well.</p>
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		<title>By: LYNNE</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-37</link>
		<author>LYNNE</author>
		<pubDate>Tue, 21 Apr 2009 20:52:42 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-37</guid>
		<description>&lt;p&gt;As a mother of twins born 10 weeks early, a daughter if not for the love care and research of my consultant she would have been a preemie too, as a mother of a boy born asleep at 28 weeks,and a daughter born at 20 weeks alive for 10 mins only,i feel it is in honour of all my children and the future of others to end a voice to tiny lives.

It’s time the government injected hard cash into the research of premature births, instead of leaving it down to charities, if we can stop just one premature baby and its parents from feeling not only utter despair and emptiness,if we can make one family leave the hospital with their baby thanks to research into why these births occur and to whom, then its a job well done.

Mr brown, Mr Cameron as parents you need to join as politicians, you need to invest in our tiny babies survival&lt;/p&gt;

</description>
		<content:encoded><![CDATA[<p>As a mother of twins born 10 weeks early, a daughter if not for the love care and research of my consultant she would have been a preemie too, as a mother of a boy born asleep at 28 weeks,and a daughter born at 20 weeks alive for 10 mins only,i feel it is in honour of all my children and the future of others to end a voice to tiny lives.</p>
<p>It’s time the government injected hard cash into the research of premature births, instead of leaving it down to charities, if we can stop just one premature baby and its parents from feeling not only utter despair and emptiness,if we can make one family leave the hospital with their baby thanks to research into why these births occur and to whom, then its a job well done.</p>
<p>Mr brown, Mr Cameron as parents you need to join as politicians, you need to invest in our tiny babies survival</p>
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		<title>By: hollie tudor</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-31</link>
		<author>hollie tudor</author>
		<pubDate>Wed, 15 Apr 2009 11:36:26 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-31</guid>
		<description>&lt;p&gt;i am supporting this campaign as i had my first child 5 weeks early she weighed 4lb 9oz and was perfectly healthy, i had strep b in the pregnancy and my consultant believed this was the reason for her arriving so soon, i am fully aware of the hurt and damage this can do, and also i was a lucky one xoxo&lt;/p&gt;
</description>
		<content:encoded><![CDATA[<p>i am supporting this campaign as i had my first child 5 weeks early she weighed 4lb 9oz and was perfectly healthy, i had strep b in the pregnancy and my consultant believed this was the reason for her arriving so soon, i am fully aware of the hurt and damage this can do, and also i was a lucky one xoxo</p>
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		<title>By: lisa</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-30</link>
		<author>lisa</author>
		<pubDate>Wed, 15 Apr 2009 11:15:27 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-30</guid>
		<description>I suffered pre-eclampsia from 26+ weeks kept in hospital from 27 weeks,my son was born by c-section 29+ 2 days gestation weighing 920grms.
Richard was in neonatal unit for 6 months,blood tranfusion, henia op few days old and he had a open heart duct,they took blood from him daily from a little needle prick in his hands and feet too check his oxygen level in his blood.(he still has the little scare's. He came home on oxygen just weighing over 5lbs and came off oxygen just before christmas. The support and care of the staff was amazing( lewisham hospital).
he had pneumonia and a chest infection before he was two,but now he is a healthy 8 year old.That is why i support stand up for tiny lives,all these hospitals need too stay open x</description>
		<content:encoded><![CDATA[<p>I suffered pre-eclampsia from 26+ weeks kept in hospital from 27 weeks,my son was born by c-section 29+ 2 days gestation weighing 920grms.<br />
Richard was in neonatal unit for 6 months,blood tranfusion, henia op few days old and he had a open heart duct,they took blood from him daily from a little needle prick in his hands and feet too check his oxygen level in his blood.(he still has the little scare&#8217;s. He came home on oxygen just weighing over 5lbs and came off oxygen just before christmas. The support and care of the staff was amazing( lewisham hospital).<br />
he had pneumonia and a chest infection before he was two,but now he is a healthy 8 year old.That is why i support stand up for tiny lives,all these hospitals need too stay open x</p>
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		<title>By: Janine</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-29</link>
		<author>Janine</author>
		<pubDate>Wed, 15 Apr 2009 10:50:25 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-29</guid>
		<description>my daughter was born on the 04/05/00 at just 24wks and weighing 1 lb 10,she was give less then 5% chance of survival but she proved them all wrong and sfter 5 1/2 long hard months in hospital she came home weighing 7lb.She will be 9 in 3wks and is doing really well,this is why i support stand up for tiny lives..</description>
		<content:encoded><![CDATA[<p>my daughter was born on the 04/05/00 at just 24wks and weighing 1 lb 10,she was give less then 5% chance of survival but she proved them all wrong and sfter 5 1/2 long hard months in hospital she came home weighing 7lb.She will be 9 in 3wks and is doing really well,this is why i support stand up for tiny lives..</p>
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		<title>By: lisa</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-28</link>
		<author>lisa</author>
		<pubDate>Tue, 14 Apr 2009 22:50:28 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-28</guid>
		<description>My daughter, jayne, was born on 13 june 06 at 26 weeks and 2 days gestation weighing 2.2lb. We were told, even during delivery, that she couldn’t survive being so early, 

We took jayne home the day before her due date. The weeks in between are almost impossible to describe - the fear, the tears, the agony, the hope.

While the care, support and skill of the staff at the neonatal unit at RVI Newcastle and wansbeck Ashingtonhas been truly humbling - we have no idea why jayne came so early. I wouldn’t wish it on anyone. That’s why I support Stand Up for Tiny Lives.  

jayne is 3 this year and she is doing good thanks</description>
		<content:encoded><![CDATA[<p>My daughter, jayne, was born on 13 june 06 at 26 weeks and 2 days gestation weighing 2.2lb. We were told, even during delivery, that she couldn’t survive being so early, </p>
<p>We took jayne home the day before her due date. The weeks in between are almost impossible to describe - the fear, the tears, the agony, the hope.</p>
<p>While the care, support and skill of the staff at the neonatal unit at RVI Newcastle and wansbeck Ashingtonhas been truly humbling - we have no idea why jayne came so early. I wouldn’t wish it on anyone. That’s why I support Stand Up for Tiny Lives.  </p>
<p>jayne is 3 this year and she is doing good thanks</p>
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		<title>By: Lorraine</title>
		<link>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-27</link>
		<author>Lorraine</author>
		<pubDate>Tue, 14 Apr 2009 21:04:31 +0000</pubDate>
		<guid>http://www.standupfortinylives.org/2009/04/14/why-are-you-supporting-stand-up/#comment-27</guid>
		<description>Hi i suffered from pre-eclampsia with both my children,both were delivered by emergency c-section,my daughter was 5wks early &#38; weighed 3 pound 14 oz's &#38; my son was 4wks early &#38; weighed 4 pound 2 oz'z neither had any problem's at all.I am so thankful 2 the special care staff &#38; the Surlingham ward at the old Norfolk &#38; Norwich Hospital.My daughter is now going 2 celebrate her 21st birthday &#38; getting married this year,the 2 wks i spent in hospital before she was delivered were the most scary of my life ,but miracle's do happen  .</description>
		<content:encoded><![CDATA[<p>Hi i suffered from pre-eclampsia with both my children,both were delivered by emergency c-section,my daughter was 5wks early &amp; weighed 3 pound 14 oz&#8217;s &amp; my son was 4wks early &amp; weighed 4 pound 2 oz&#8217;z neither had any problem&#8217;s at all.I am so thankful 2 the special care staff &amp; the Surlingham ward at the old Norfolk &amp; Norwich Hospital.My daughter is now going 2 celebrate her 21st birthday &amp; getting married this year,the 2 wks i spent in hospital before she was delivered were the most scary of my life ,but miracle&#8217;s do happen  .</p>
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